EAHP — European Association of Hospital Pharmacists

European policies on rare diseases and health insurance funds management.
Access to and approval of new medicines according to the EMA perspective.
The management and the therapeutic pathways for rare diseases; the relevance of the rare disease’s networks and the role of genetics in rare diseases.
The patient perspectives and the available patient support programmes in Europe related to rare diseases.
The role of the Real World Evidence (RWE) in the evaluation of rare diseases.
The sustainability of innovative treatments for rare diseases in the context of overall public health care system.
The complexity of dispensing orphan medicines or medical devices for patients affected by rare diseases according to the experience of the hospital pharmacist.
The effective communication on rare diseases across healthcare sectors and with patients.
Available databases, observatories and websites with useful information on rare diseases and orphan medicines.
An interactive panel discussion will facilitate exchange nad interaction among synergy certification course participants and the speakers coming across Europe

2025 EAHP SHORTAGE SURVEY