European Cancer Patient Coalition
ECPC works for a Europe of equality, where all European cancer patients have timely and affordable access to the best treatment and care available, throughout their life. ECPC believes that cancer patients are the most important partners in the fight against cancer and against all the cancer-related issues affecting our society. Policy makers, researchers, doctors and industry should recognize cancer patients as co-creators of their own health.
Visit www.ecpc.eu to learn more about them
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European Federation of Allergy and Airways Diseases Patients’ Associations
The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) have a vision that it is for all people with allergy, asthma and chronic obstructive pulmonary disease (COPD) in Europe to live uncompromised lives, have the right and access to best quality care, participate in their care and to have a safe environment.
EFA mission is to be the voice of allergy, asthma and COPD patients at European level and to be actively involved in the decisions impacting their health by:
1. Advocating at EU level for the needs of people with allergy, asthma and COPD
2. Enabling a powerful European network of patients’ organisations
3. Valuing all members equally
4. Sharing knowledge and implementing best practices
5. Creating patient driven projects
6. Cooperating with health care professionals, scientists and other stakeholders/NGOs
You can find more information about EFA here.
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European Federation of Neurological Associations
The European Federation of Neurological Associations (EFNA) is an umbrella group representing pan-European neurology patient groups
Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our members – allowing them to be the most effective advocates possible in their own disease specific areas.
EFNA embraces the concept of Partnership for Progress – working at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.
EFNA’ smission
- To influence policy makers and legislators in Europe (and particularly in the European Union) to prioritise resource allocation to reduce the burden for people living with a neurological disorder.
- To communicate with our members to achieve positive change and to ensure that our actions both represent and provide added value to their own concerns and activities.
- To establish strong partnerships and alliances with relevant stakeholders in the scientific, clinical, political and corporate arenas to help us to reach our goals – partnership for progress.
EFNA’s value
- Trustworthiness and transparency – we will be open, honest and ethical in all we do.
- Respect and democracy – we respect one another’s differences and contributions.
- Sustainability – we will make best use of our resources to bring about changes that produce permanent benefits for our members and will plan our activities to ensure EFNA’s future.
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European Heart and Lung Transplant Federation
The EHLTF is:
- a federation of European National Heart and Lung Transplant Patient Associations.
- a member of the European Patients Forum. (EPF)
In pursuit of their primary aims and objectives, it is the intention of the EHLTF to pursue a policy of enlargement and inclusion, embracing all European Countries who wish to be members, and to become an authoritative Pan-European Patient voice in all areas of Cardiothoracic Transplantation. EHLTF will also seek to become the authoritative voice representing our growing membership in its dealing with the European Parliament in the maintenance, support and further development of cardio-thoracic transplantation and to communicate all or any developments to its membership.
Visit www.ehltf.org to learn more about them.
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European Men’s Health Forum
EMHF is the only European organisation dedicated to the improvement of men’s health in all its aspects. Its vision is a future in which all men in Europe have an equal opportunity to attain the highest possible level of health and well-being.
Its mission is to improve men’s health across all countries in Europe by promoting collaboration between interested organisations and individuals on the development and application of health-related policies, research, education and prevention programmes.
EMHF is committed to gender equality, fully supports activities to improve women’s health, and opposes the re-allocation of funding from women’s to men’s health
Learn more about EMHF by visiting www.emhf.org
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European Multiple Sclerosis Platform
The European Multiple Sclerosis Platform (EMSP) is firmly committed to an ultimate vision of a world without multiple sclerosis (MS).
We work on a three pillar approach to ensure that people with MS have a real voice in determining their own objectives and priorities:
- campaigning through advocacy and awareness-raising;
- collecting and sharing knowledge and expertise;
- encouraging research and data collection.
Theri presentation brochure can be found here.
Find more about EMPS here.
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European Parkinson’s Disease Association
EPDA is a non-political, non-religious and not-for-profit organization. Its mission is to enable all people with Parkinson’s to live a full life while supporting the search for a cure and To become the leading voice for Parkinson’s in Europe by providing innovative leadership, information and resources to all Parkinson’s stakeholders.
Visit www.epda.eu to learn more about them.
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European Patients Forum
The European Patients’ Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Our members represent specific chronic disease groups at EU level or are national coalitions of patients.
EPF Vision is that all patients with chronic conditions in Europe have access to high-quality, patient-centred health and related care.E
EPF Mission is to be the collective influential patient voice in European health and related policies and a driving force to advance patient empowerment and equitable patient access to care in Europe.
EPF helps to empower patients’ organisations through educational seminars, policy initiatives and projects. We coordinate best practice exchanges between patient organisations at European and national levels. Our programmes also help to strengthen their organisational and advocacy capacity.
Please learn more about EPF here.
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The European Federation of Chron’s and Ulcerative Colitis Association
The European Federation of Crohn’s & Ulcerative Colitis Associations is an umbrella organization representing 33 national patient associations. EFCCA aims to improve the quality of life for people with IBD and give them a louder voice and higher visibility across Europe and beyond. Its headquarter is based in Brussels and has three staff members that work alongside the Executive Board which consists of 6 elected representatives from its member associations.
Visit www.efcca.org to
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