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3rd Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies- Let’s make a pact to ensure patients’ sustainable access to rare disease therapies

 

3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies

 

 

Let’s make a pact to ensure patients’ sustainable access to rare disease therapies

13-14 February 2019 
Crowne Plaza Brussels – Le Palace, Rue Gineste 3, 1210 Brussels, Belgium
Metro Station: Rogier

An exceptional two-day event not to be missed!

Attend to take part in discussions with patient advocates, policy makers, payers, HTA bodies, clinicians, healthcare industry executives and investors on how to improve patients’ access to rare disease medicines. Learn more about actions planned ahead of the European elections in May 2019.

Views expressed by participants will go towards producing a roadmap document, which will offer practical and implementable solutions and set out the commitment of all players, working towards the goal of accelerating the development of, and guaranteeing timely and universal access to, rare disease therapies.

This roadmap will be broadly disseminated to European and national institutions ahead of the May 2019 European parliamentary elections.

This event is recommended for:

  • Patient advocates
  • Payers, health technology assessment (HTA) bodies, and national Competent Authorities
  • Policy makers and regulators
  • Clinicians and academics
  • Pharmaceutical and biotech industry leaders
  • Consultants and Investors

Registration

Registration is now open.  If you are an ERTC Member, you will receive all information on how to get your complimentary passes via email shortly. If you wish to become an ERTC member, please contact Anne-Mary Bodin (anne-mary.bodin@eurordis.org).

For all other categories, please use the following links: 

  • Private companies, healthcare industry, consultants (non ERTC members) => please register HERE (2500€)
  • Rare disease patients and patient advocates => please register HERE (75€)
  • ERN representatives, academia, healthcare professionals or researchers => please register HERE (150€)
  • Payer bodies, HTA agencies, National Competent Authorities, regulators, policy makers or government workers => please register HERE (150€)
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EAHP Forum

All the EAHP team is working on providing a Forum that can help connect all the members in Conversations and Groups to talk about important matters for the European Hospital Pharmacist.

The Forum will be accessible for all the EAHP members, you don’t have to create a new account to browse and participate.

Conversations and groups

The Conversations will be moderated by our team to provide documents and relevant topics for the community.

The Groups will connect all members that share a category. Members who work on the same assocation, on the same hospital, that have the same role, etc.

Stay tuned for the realase of the forum. Soon on EAHP.