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DEVELOPMENT OF AN INFORMATIC SYSTEM FOR THE FOLLOW-UP OF PATIENT-REPORTED OUTCOMES FOR PEOPLE LIVING WITH HIV

European Statement

Patient Safety and Quality Assurance

Author(s)

Feijoo-Vilanova P (1,3), Cid-Silva P (1,3), Mena de Cea A (3), Sanclaudio-Luhía AI (3), Luaces-Rodríguez A (1,3), Caeiro-Martínez L (1,3), Gómez-Costa E (1,3), Fernández-Diz C (1,3), Torres-Pérez A (1,3), Martín-Herranz I (1,3), Margusino-Framiñán L1,3

1. Pharmacy Department.
2. Informatic Department.
3. Research Group of Hospital Pharmacy. Biomedical Research Institute A Coruña (INIBIC). A Coruña University Hospital (CHUAC), Sergas. A Coruña University (UDC).

Why was it done?

An informatic program was developed for the clinical follow-up of clinical and patient-reported outcomes (PROs) of people living with HIV (PLWH) on antiretroviral treatment (ART).

What was done?

Pharmaceutical follow-up and outcomes research of PLWH must incorporate innovative solutions that allow the data optimization from electronic medical record (EMR) and PROs data, since traditional manual methods are insecure and inefficient.

Our objective is to describe a software (SiMON-PRO: Intelligent Monitoring System; acronym in Spanish) based on EMR data digitization and the PRO telematics data registry, and to describe the data collection procedure since June 2023.

How was it done?

A multidisciplinary group of clinicians (pharmacists and infectologists) transferred the following software requirements to the hospital’s informatic engineers: automatic incorporation of patient data from the EMR; generation of events related to clinical occurrences and alerts regarding the efficacy and safety of ART; documentation of pharmacist consultations; data analytics by business intelligence for investigational purposes.

Regarding the data capture procedure, during each visit to the outpatient clinic at hospital’s pharmacy department, a record is created that incorporates the latest digitized EMR data and the PROs data completed by patients on a mobile device, which is transferred to the software through a cyber-secure Wi-Fi connection and then to the EMR.

What has been achieved?

A software solution, SiMON-PRO, structured into six sections, was developed. 1/demographic data; 2/ epidemiology; 3/events; 4/analytics; 5/ART; 6/PROs questionnaires: about quality of life (EQ-5D-5L, HAT-QoL, MOS-HIV), chronic treatment acceptance (ACCEPT) and injection tolerance (PIN).

The software allows outcomes to be exported to the usual operating systems through Big Data and Business Intelligence. It also automatically generates alerts for assisted prescription validation and produces reports for exporting to the EMR.

What next?

SiMON-PRO is an innovative solution for the clinical follow-up and research of PLWH, increasing the quality, efficiency, and safety of healthcare. The following steps include the use of the data, events and alarms generated for better pharmaceutical care of PLWH and, gradually, design this software for other pathologies.

EXPREM PROJECT: TRANSFORMING THE PHARMACEUTICAL EXPERIENCE FOR MULTIPLE SCLEROSIS PATIENTS

European Statement

Clinical Pharmacy Services

Author(s)

Ranz Ortega P; Martín Barbero ML; Escudero Vilaplana V; Lobato Matilla E; Carrillo Burdallo A; Del Barrio Buesa S; Herranz Alonso A; Sanjurjo Sáez M.

Why was it done?

The EXPREM project aimed to enhance the patient experience for individuals with Multiple Sclerosis (MS) undergoing pharmacotherapeutic follow-up at our hospital.The project involved designing a Patient Journey Map,conducting patient interviews at key touchpoints,and identifying strategies to improve service quality and patient satisfaction.

What was done?

Due to the chronic and complex nature of MS,patients often fase challenges throughout their healthcare journey.The fluctuating symptoms and long-term treatment regimens require frequent interactions with healthcare providers,making the patient experience a critical component of disease management.This project aimed to identify gaps in pharmaceutical care,improve service efficiency,and create a more patient-centered healthcare environment.

How was it done?

The project was conducted in five phases from January-April 2024:
1.Defining the pharmaceutical care process:a detailed map was designed to outline the pharmaceutical care process,including:before arriving at the pharmacy service(PS), patient visit and post-visit
2.Patient Interviews:three MS patients receiving treatment—one newly diagnosed,one with stable chronic treatment,and one with a recent medication change—were interviewed by a pharmacist in semi-structured,open-ended conversations to capture their perceptions and experiences with the Pharmacy Service
3.Direct Observation(SAFARI Method):the pharmacist working group simulated the patient experience to understand what patient hear,see and feel during their journey, identifying areas for improvement in the facility
4.Designing the Patient Journey Map:information from interviews and observations was used to create the Patient Journey Map,highlighting key areas for enhancement
5.Proposals for Improvement:based on the findings,specific actions were proposed to improve the patient experience

What has been achieved?

The project identified areas for improvement, such as:
Before arriving at PS
•The need for a digital appointment management system to reduce waiting times and and improve medication dispensing efficiency.
•Improvements in the physical infrastructure ensuring privacy,better signage,accessible facilities and developing health education programs,such as audiovisual health material for waiting times.
Patient visit and follow-up
•Expanding the use of health apps,videoconsultation to improve real-time communication and ensure the efficacy and safety of medication at home
•Home medication dispensing to save time and reduce costs for patients

What next?

The methodology will be shared with other pharmacy services for broader implementation and the impact of these improvements on patient satisfaction and health outcomes will be systematically evaluated

INVOLVING PATIENTS IN A WORKSHOP FOCUSED ON COMMUNICATION SKILLS: A PROOF OF CONCEPT OF EXPERIENTIAL TRAINING FOR RESIDENTS IN HOSPITAL PHARMACY

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European Statement

Education and Research

Author(s)

Caroline Hache, Stéphane Honoré, Guillaume Hache

Why was it done?

The development of clinical pharmacy allows pharmacists to take patient-centered roles and responsibilities. However, patient-centered care requires a specific set of skills and training, such as patient-focused communication and conducting structured interviews. Thus, improvement of pharmacist-patient communication may lead to better clinical outcomes.

What was done?

We developed a workshop involving patients within the training programme of residents in hospital pharmacy. The workshop focused on communication skills needed to improve the quality and effectiveness of a pharmaceutical interview.

How was it done?

The workshop was developed jointly by two senior clinical pharmacists and a lecturer in education and communication science. The learning process integrated: working on participants’ perception of pharmacists-patient communication, didactic learning, training activities and evaluation. The assessment of the learning effect was performed by self-, peers-, and patient-scored charts. Patients’ feedback during the training activities and assessments was highlighted as the cornerstone of the learning process.

What has been achieved?

First, we built a competency chart on communication skills needed to perform a structured pharmaceutical interview. This tool has been validated by the patients and well accepted by the learners. It was used to assess the learning effect of the workshop, and may serve as a guide for the continuous development of junior practitioners. Secondly, the workshop has actually been implemented, with both the learners and patients expressing a high general acceptance and satisfaction. Finally, preliminary results show a learning effect assessed by both peers and patients.

What next?

The involvement of patients needs to be further expanded to the training programmes of undergraduate students, residents and clinical pharmacists. A future action planned is to develop a model with the French Society of Clinical Pharmacy (SFPC) for a national systematic training module: “Improving pharmaceutical interviews’ performance through effective communication”, involving patients.

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