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12.2 Medicines shortages advocacy activity

Since the January 2015 Board Meeting…

2015 COST application

EAHP prepared and submitted a second submission to the EU’s COST programme to fund an international research network on the topic of medicines shortages.

Taking on board comments received from assessors in 2014 a focus was given to improving the spread of interested parties in the network of ‘secondary proposers’ with 54 secondary proposers representing 25 countries from Europe, North America and Near Neighbouring Countries, including a spread of pharmacist organisations (e.g. EAHP, EIPG, ESOP, FIP, ASHP, Canadian hospital pharmacists, EAFP), other healthcare professional organisations (e.g. haematologists, respiratory specialists, CPME), patient organisations (rare disease patients, EPHA, EHN, European Patients Forum, European Cancer Patient Coalition, European Multiple Sclerosis Platform, AGE Platform Europe, European AIDS Treatment Group), and other organisations and representatives including ethicists, social scientists, lawyers, HOPE and the Drug Information Association.

Despite repeated invitations, PGEU, EFPIA, EGA, EAHP’s corporate partners, ESCP, GIRP, AESGP and EAEPC declined to be involved at the point of application. 

The application will now be reviewed by the COST office and following a number of stages of review we may be invited to a panel interview in September. The final submission is available to view here. Names of secondary proposers here.

In any case, with such an interested network coming together for the submission, there is a suggestion that we maintain and make use of the enthusiasm on an ad hoc basis e.g. semi-regular updates sent out with shortages-related news.

Continued interest in the November 2014 Report

Elsewhere, media interest in the November 2014 report continues with the Lancet recently publishing an article inspired by the report. Available here. 

The President was also recently invited to present the results at a Drug Information Association conference in Paris.

Politically, a meeting between EAHP, EURORDIS (rare disease patients’ association) and the Latvian Presidency of the European Union is scheduled to take place shortly to consider whether a medicines shortages item could be added to the agenda of the June 2015 meeting of EU Health Ministers. 

Work also continues with the “supply chain stakeholders” (EFPIA, EGA, GIRP, EAEPC, AESGP, PGEU and EAHP). EAHP recently gave its response the European Commission’s Matrix Insight Study (published in December 2014 two years after it was completed!) with an intention that the supply chain stakeholders give a joint response.

John Chave has also invited the stakeholder organisations to contribute their views on matters relating to medicines shortages information. More information here.

Regrettably the supply chain stakeholders held a meeting on shortages information examining some potential national best practise case studies at a time when EAHP could not participate (during the EAHP Congress). A catch up telephone call with John Chave will take place on his return from vacation next week.

Finally, EAHP held an off programme meeting at the EAHP Congress on medicines shortages information provision which is intended to form the basis of a short paper that can be shared publicly as a contribution to the overall discussion.

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EAHP Forum

All the EAHP team is working on providing a Forum that can help connect all the members in Conversations and Groups to talk about important matters for the European Hospital Pharmacist.

The Forum will be accessible for all the EAHP members, you don’t have to create a new account to browse and participate.

Conversations and groups

The Conversations will be moderated by our team to provide documents and relevant topics for the community.

The Groups will connect all members that share a category. Members who work on the same assocation, on the same hospital, that have the same role, etc.

Stay tuned for the realase of the forum. Soon on EAHP.